We know people with HAE are resilient. But living with HAE attacks can be tough, even if you don't always show it.
So, we asked the community to help us open the dialogue about the reality of what it's like to live with HAE.
We need your voice to keep the conversation going. Click below to share your own experience.
SHARE YOUR EXPERIENCEWhat impacts your decisions
to treat an HAE attack?
What impacts your decisions
to treat an HAE attack?
What challenges do you face with your on-demand medication?
Which attacks are hardest to treat?
Travel tips & tricks
Talking to your doctor
Still having attacks, despite preventative medication?
You're not alone. Hear from people like you, who are navigating living with the unpredictability of HAE.
Hear their stories
Back to top
