Managing HAE attacks:
A shared decision-making guide

Partnering with your healthcare team to treat attacks earlier and
prevent attack progression

What is shared decision-making?

While doctors are experts in HAE management and the studies that go along with it, you are the only expert in what matters to you, your family, and your lifestyle. Together with your doctor, you have all the information needed to make informed treatment decisions. Shared decision-making (SDM) involves working together with your doctor to find the right HAE attack management plan for you.

WHEN PEOPLE LIVING WITH HAE ENGAGE IN SHARED DECISION-MAKING THEY:

Learn more about
HAE attack
management

Understand the
pros and cons of
on-demand treatment
decisions

Are empowered
with information and
tools to support
optimal treatment

Are better prepared
to talk with
and collaborate with
their doctor

Are more likely
to follow through on
treatment plans

The 3D MODEL EXPLAINS how to engage in SDM for on-demand treatment of attacks

Adapted from Banerji, et al.

SDM is an ongoing process.
A good time to revisit your on-demand treatment plan is when your situation changes or new treatments become available.

On-demand treatment is an important part of HAE management and will be a focus of your shared decision conversation

FAMILIARIZE YOURSELF WITH HAE GUIDELINES TO HELP GUIDE YOUR TREATMENT PLAN

US guidelines advise 4 key pillars of treatment, which includes strong recommendation that on-demand medication is considered for every attack.

1
KEEP ON-DEMAND TREATMENT AVAILABLE AT ALL TIMES
Every person living with HAE should consistently have sufficient on-demand treatment for at least 2 attacks and carry on-demand medication at all times, even if they’re taking prophylaxis.
2
TREAT EARLY TO STOP ATTACKS FROM GETTING WORSE
On-demand medication should be considered for every attack and taken at attack onset.
3
TREAT REGARDLESS OF LOCATION AND INTENSITY
ALL HAE attacks are eligible for treatment, regardless of where the swelling occurs or how minor the attacks may seem at onset.
4
HAVE A PERSONALIZED ACTION PLAN IN PLACE
A treatment plan should be carefully developed based on your needs and through a shared decision-making process with your doctor.

Download our interactive template to help you create a personalized action plan with your doctor.

Download the template

Managing HAE attacks: A shared decision-making guide