Still experiencing HAE attacks? You’re not alone
Anyone who has HAE, including those taking prophylaxis, can experience unpredictable, potentially life-threatening, HAE attacks. These attacks force people to make compromises in their everyday lives. We asked real people living with HAE to share their stories.
Hear people living with HAE share their experiences
Why she keeps on-demand
treatment on hand
When an attack progresses and begins to take over
If only I treated my attack right away
The importance of treating in minutes, not hours
Laurie shares her “Dear Future Me” letter
Linda shares her “Dear Future Me” letter
Christina shares her “Dear Future Me” letter
Why she keeps on-demand
treatment on hand
Recognizing the onset of an attack and taking on-demand treatment
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RegistrarseReferences: 1. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. Remaining burden of hereditary angioedema (HAE) attacks despite modern long-term prophylaxis. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 2. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. HAE patients decision to carry on-demand treatment when away from home. Abstract presented at: 13th C1-inhibitor Deficiency & Angioedema Workshop, May 4-7, 2023; Budapest, Hungary. Allergy Asthma Clin Immunol. In Press. 3. Longhurst H, Bouillet L, Cancian M, et al. Hereditary angioedema attacks in patients receiving long-term prophylaxis: a systemic review. Presented at: APAAACI October 23-26, 2023; Singapore. 4. Maurer M, Aberer W, Caballero T, et al. The Icatibant Outcome Survey: 10 years of experience with icatibant for patients with hereditary angioedema. Clin Exp Allergy. 2022;52:1048-1058. doi:10.1111/cea.14206.
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