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Still experiencing HAE attacks? You’re not alone
Anyone who has HAE, including those taking prophylaxis, can experience unpredictable, potentially life-threatening, HAE attacks. These attacks force people to make compromises in their everyday lives. We asked real people living with HAE to share their stories.
Write a Message to Your Future Self
How would you advise your future self to handle the next HAE attack?
Write a letter nowReferences: 1. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. Remaining burden of hereditary angioedema (HAE) attacks despite modern long-term prophylaxis. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 2. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. HAE patients decision to carry on-demand treatment when away from home. Abstract presented at: 13th C1-inhibitor Deficiency & Angioedema Workshop, May 4-7, 2023; Budapest, Hungary. Allergy Asthma Clin Immunol. In Press. 3. Longhurst H, Bouillet L, Cancian M, et al. Hereditary angioedema attacks in patients receiving long-term prophylaxis: a systemic review. Presented at: APAAACI October 23-26, 2023; Singapore. 4. Maurer M, Aberer W, Caballero T, et al. The Icatibant Outcome Survey: 10 years of experience with icatibant for patients with hereditary angioedema. Clin Exp Allergy. 2022;52:1048-1058. doi:10.1111/cea.14206.
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