In honor of HAE Day, watch a documentary made for the community, by the community.
Join us in changing the conversation about HAE attacks. Submit the questions that you wish you were asked about HAE attacks.
Join the conversationJoin us in changing the conversation about HAE attacks. Submit the questions that you wish you were asked about HAE attacks.
Join the conversationYou're not alone—the HAE Attack Journey Survey shows how even patients taking prophylaxis prepare for and treat HAE attacks.
View ResultsEven with prophylaxis, the burden of HAE attacks persists for these people with HAE. Hear their treatment stories.
Watch VideosReferences: 1. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. Remaining burden of hereditary angioedema (HAE) attacks despite modern long-term prophylaxis. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 2. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. HAE Patients decision to carry on-demand treatment when away from home. Abstract presented at: 13th C1-inhibitor Deficiency & Angioedema Workshop, May 4-7, 2023; Budapest, Hungary. Allergy Asthma Clin Immunol. In Press. 3. Grumach A, van Kooten S, Heckmann M, Danese S, Goga L, Garcez T. Understanding the complex decision-making associated with on-demand treatment of hereditary angioedema (HAE) attacks. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press.
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